Govt has formulated national policy for rare diseases: Nadda
New Delhi: Union Health Minister J P Nadda today said the government had formulated a national policy for "rare diseases", while asserting that the process of preparing a registry of such diseases was already initiated.
He also said full support from the government to provide cost-effective management and investigation facilities to the patients suffering from rare diseases would be provided.
A newsletter published by the "Indian Organisation of Rare diseases" was also released on the occasion.
Noting that it was an irony that the "rare diseases" were rarely discussed, Singh pointed out that the reason for this was that the healthcare system of the country was preoccupied with more prevalent diseases, while these "rare diseases", usually genetic or existing from the birth, had a prevalence of hardly about seven per cent.
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