Implement national policy on rare diseases: HC tells Centre
New Delhi: The Delhi High Court has asked the Centre to take urgent steps to make the National Policy for Treatment of Rare Diseases functional at the ground level.
Justice Manmohan has directed the Ministry of Health and Family Welfare to form an inter-ministerial consultative committee as well as a central level technical-cum- administrative committee (as envisaged in the national policy) by the first week of September.
"This court is of the view that urgent steps need to be taken by the ministry to make the national policy functional at the ground level," the court said.
It asked the authorities to file a status report on or before November 30.
The court directed that the Delhi government, in view of the already existing National Policy for Treatment of Rare Diseases, to "follow-up" with the central government and submit a proposal for utilizing the funds from the available corpus.
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