Ensure funds for treatment of kids with rare diseases: Delhi HC directs Centre
The bench of Justice Rekha Palli said the court is of the view that the process is to be started from major hospitals across the country, such as AIIMS.;
New Delhi: The Delhi High Court on Tuesday directed the Centre to ensure funds to cover the expenses towards the treatment of children suffering from rare diseases, saying the amount to be spent on such treatments and medicines can be adjusted from various funds, including the National Disability Fund.
The bench of Justice Rekha Palli said the court is of the view that the process is to be started from major hospitals across the country, such as AIIMS.
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The court was hearing a batch of pleas pertaining to children suffering from rare diseases like Duchenne Muscular Dystrophy (DMD) and Hunter's syndrome, seeking direction to the Centre to provide them uninterrupted and free of cost treatment as the therapy is very expensive.
Hunter syndrome is a rare, inherited disorder in which the body does not properly digest (break down) sugar molecules, while Duchenne Muscular Dystrophy (DMD) is also an inherited disorder of progressive muscular weakness.
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