No patient benefitted from National Policy for Rare Diseases scheme, BJP MP writes to Health Minister
In a tweet, the MP stated, "Last year, the govt assured financial assistance of Rs 50 lakh to every rare disease patient. So far, not a single patient has benefited from this scheme. 10 children have died waiting for treatment.;
New Delhi: Criticizing the implementation of the health ministry scheme, 'National Policy for Rare Diseases, 2021', the BJP MP Varun Gandhi has said that no patient has so far benefitted from the scheme, which assures assistance of Rs 50 lakh to people with rare diseases, warning that it endangers the lives of 432 patients, mainly children below six years of age.
In a tweet, the MP stated, "Last year, the govt assured financial assistance of Rs 50 lakh to every rare disease patient. So far, not a single patient has benefited from this scheme. 10 children have died waiting for treatment.
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In a letter to Mandaviya, Gandhi noted that the ‘National Policy for Rare Diseases, 2021’ was launched by the Ministry of Health and Family Welfare on March 30, 2021, to save the lives of patients suffering from rare diseases.
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