Provide report on stocks of rare genetic blood disorder injection: Delhi HC asks Centre, Delhi govt

Written By :  Ruchika Sharma
Medically Reviewed By :  Dr. Kamal Kant Kohli
Published On 2024-12-02 08:00 GMT   |   Update On 2024-12-02 08:00 GMT
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New Delhi: In response to the plea filed by several individuals suffering from haemophilia disease, the Delhi High Court has directed the Centre and Delhi government to file their reports on the status of stocks of Antihemophilic Factor injection.

The governments have also been asked to also provide status reports on the existing supply chain system for all the hospitals under their administration. The court listed the matter on December 12, PTI reported.

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"The respondents are directed to file status reports with respect to the stock of the AHF injections, and the existing supply chain system for all the hospitals under their administration. The same be done within ten days," Justice Sanjeev Narula said in an order passed on November 28.
The court was hearing a petition by several persons suffering from haemophilia disease. 
The petitioners submitted that the treatment for this disease is expensive and requires injections of Antihemophilic Factor (AHF).
They said while the treatment for haemophilia is provided in the government hospitals, often there is insufficient stock of the injection which renders their lives at risk.
The plea sought a direction to the Centre and Delhi government to monitor the supply chain management of AHF injections in order to prevent any failure or stoppage in its supply and to develop contingency plans for critical shortage of the medication.

Haemophilia is a rare genetic blood disorder that impairs the blood's ability to clot properly, leading to excessive bleeding even from minor injuries. It is caused by a deficiency in certain clotting factors, which are proteins that help blood clot. Hemophilia is inherited and is most commonly seen in males.

Read also: Plea for Urgent Financial Aid for Girl with Rare Disease: Delhi HC seeks Centre's reply

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