Death of infant due to rare genetic disease affecting skin - Video
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Overview
A Boston mother has opened up about the devastating loss of her two-month-old son, Felix Jean, who succumbed to a rare genetic condition called ‘Epidermolysis bullosa’ (EB) in March 2022. This condition, which causes painful skin blisters and peeling, led to Felix’s untimely death after a short and agonizing battle.
Felix was born with no skin on the back of his hand. As hours passed, more of the babys’ skin began to peel off, leaving his heels and feet almost entirely de-gloved. Even nursing caused his skin to shred off his lip.
Speakers
Anshika Mishra is a dedicated scholar pursuing a Masters in Biotechnology, driven by a profound passion for exploring the intersection of science and healthcare. Having embarked on this academic journey with a passion to make meaningful contributions to the medical field, Anshika joined Medical Dialogues in 2023 to further delve into the realms of healthcare journalism.