World Rare Disease Day: Key Challenges & Developments decoded with Prasanna Shirol, ORDI & Dr Neerja Gupta, AIIMS Dr. Nandita Mohan28 Feb 2025 11:30 AM ISTRare diseases may be uncommon, but their impact on individuals, families, and communities is profound. Since 2008, Rare Disease Day has been observed...
Patient groups concerned over 'delay' in rare diseases treatment policy implementation Medical Dialogues Bureau21 Nov 2018 9:21 AM ISTÂ New Delhi:Â Patient's organisations on Tuesday sought immediate implementation of the National Policy for Treatment of Rare Diseases, stating the...
Guest Blog: A RARE Victory For Rare Disease Patients In India In Grave Danger shambhavi ravishankar19 Nov 2018 4:24 PM ISTOne of the unfortunate realities of Indian society and governance institutions at large is the fact that there is not enough conversation on the lives...
About 70 million Indians have life-threatening rare diseases: ISCR savita thakur thakur27 Feb 2016 12:53 PM ISTNEW DELHI: Around 70 million people in India suffer from "life threatening" rare diseases, a clinical research body said.Indian Society for Clinical...
