One-year-old Pune girl who received Rs 16 crore injection for Spinal Muscular Atrophy dies Medical Dialogues Bureau3 Aug 2021 9:00 AM ISTHer rare ailment and the quest for treatment had created a huge impact on social media with netizens and others donating an amount of Rs 14 crore,...
FIRST: Roche launches Spinal Muscular Atrophy treatment Evrysdi in India Ruchika Sharma30 July 2021 1:30 PM ISTMumbai: Roche has announced the launch of Evrysdi (risdiplam), the first and only approved treatment in India for Spinal Muscular Atrophy (SMA)...
Kerala HC stresses Govt control over crowdfunding after family raises Rs 18 crore for treatment of rare disease Medical Dialogues Bureau11 July 2021 9:45 AM IST"I do not want every Tom, Dick and Harry to collect money. Is there any state control over this collection of funds via crowdfunding? We should know...
First of its kind: Newborn diagnosed with two rare genetic diseases in Jaipur Medical Dialogues Bureau13 Sept 2020 9:00 AM ISTThe baby has been diagnosed with Pompe disease and Spinal Muscular Atrophy (SMA), a doctor at J K Lone Hospital said on Wednesday.
FDA approves first oral treatment for Spinal muscular atrophy Dr. Kamal Kant Kohli8 Aug 2020 7:00 AM ISTThe U.S. Food and Drug Administration has approved Risdiplam to treat patients two months of age and older with spinal muscular atrophy (SMA).This is...
One who alleges Medical Negligence, has to prove it, not the Doctor- NCDRC Meghna A Singhania1 Oct 2016 8:39 PM IST"The onus of proving the alleged Medical Negligence in the treatment of a patient lies with the person (patient) alleging medical negligence..." A...
