The International Hip Dysplasia Registry: Global Collaborations in Developmental Dysplasia of the Hip

The International Hip Dysplasia Registry (IHDR): Global Collaborations in Developmental Dysplasia of the Hip

Developmental dysplasia of the hip (DDH) is the most common pediatric hip disorder, and despite decades of research, there is very little high-level evidence to inform health care providers, patients and families on the diagnosis, treatment and management of this condition.

The International Hip Dysplasia Registry (IHDR) was established in 2016 with the principles of global equity, diversity and inclusion (EDI) at the forefront.

The registry has since expanded from 8 centres to 29 centres across eight countries on five continents to become the largest prospective study on DDH in the world.

They are also actively seeking to further include under-represented regions through strategic addition of centres.

IDHR

• Recently, surpassing 4000 patients recruited worldwide, IHDR is ideally positioned to carry out targeted hypothesis testing studies on long-standing areas of controversy or equipoise in the field.

• The expansion of IHDR has also facilitated rich collaborations beyond the original scope of the research registry, including the opportunity for culturally specific care pathway development.

• Global collaborations also provide valuable opportunities

for knowledge exchange and enhancement of clinical care,

both formally though educational fellowships and visiting

professor programmes, and informally through peer mentorship

and case discussions.

• IHDR has partnered with seven DDH advocacy groups—IHDI, Healthy Hips Australia, I'm a HIPpy, Steps Charity Worldwide, DDH UK, Spica Life and Miles4Hips—to create the IHDR KT

Advisory Board.

• They celebrated the first annual International Hip

Health Day (IHHD) on May 31, 2021. This virtual event

brought together surgeons, researchers, study groups,

patients and advocates to recognize the broad scope of work

being done around the world in different areas of specialization

(i.e. research, clinical care, education and advocacy).

Further reading:

Global Collaborations in Developmental Dysplasia of the Hip

Kishore Mulpuri, Emily K. Schaeffer, Charles T. Price . Indian Journal of Orthopaedics (2020) 55:1357–1359

https://doi.org/10.1007/s43465-021-00504-4