AAP releases Guidance for Pediatric End-of-Life Care

USA: Some children and teens die abruptly and unexpectedly, while others die after years of a terrible disease. Early advance care planning is advantageous, and the latter days and weeks of life provide an extra opportunity for joint decision-making and reviewing care objectives.

Keeping this in mind, the American Association of Pediatrics (AAP) released pediatric end-of-life care guidelines, including advice for communicating with families and arranging advance care. The pediatrician may be a soothing guide for these families by being familiar with the physical, emotional, spiritual, and logistical aspects of end-of-life care. Pediatric palliative care and hospice materials can help families and workers throughout pediatric end-of-life care.

The study, published in the journal Pediatrics includes end-of-life care objectives, anticipatory counseling about the dying process, predicted signs or symptoms, coding status, intended site of death, and participation with palliative and hospice services for patients and their families. Making use of the strength of the medical home's trusted longitudinal connection, particularly for individuals with medical complexity, benefits the patient and family regardless of location or circumstance surrounding the end of life. Notably, when access to home-based pediatric hospice care is restricted, the medical home may assume the lead in delivering quality end-of-life care.