Rare Disease Patient Registry, Treatment Clinic soon in Kerala
Thiruvananthapuram: The Kerala government is planning to launch a registry for rare diseases and set up a treatment clinic in Kozhikode, State Health Minister Veena George announced on Friday.
Speaking after inaugurating a workshop for experts in rare disease treatment here, George said the government aims to prevent rare diseases as its primary objective.
She said a rare disease treatment clinic will be established in Kozhikode this year.
The government is making efforts to bring affected children back to life, the minister said.
According to the PTI report, "The registry for rare disease patients in the state will become a reality this year," George said.
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According to her, currently, more than 90 per cent survival rates have been achieved for children undergoing treatment for SMA (Spinal Muscular Atrophy).
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