Shedding Light on the Dual Challenges of Sarcoidosis and ILD - Dr Asmita Mehta
Sarcoidosis is a rare inflammatory disease affecting multiple organs, most commonly the lungs. This occurs when inflammatory cells aggregate to form small lesions called granulomas in organs and tissues.
These granulomas can disrupt the normal function of the involved organs, causing a wide range of symptoms, and can have a significant impact on a patient’s quality of life Although the exact cause of sarcoidosis is not fully understood, it is believed to involve genetic and a combined environmental factors that influence the immune system.
ILD, on the other hand, is a group of lung diseases characterised by progressive edema of lung tissue, leading to impaired lung function and difficulty breathing. ILD can result from underlying conditions such as sarcoidosis. Progression of sarcoidosis to ILD can further exacerbate disease-related symptoms and complications, causing significant complications for patients and caregivers.
Lack of public awareness, lack of treatment, and the complexity of these conditions can make life with sarcoidosis and ILD more difficult. Patients often face misdiagnosis, delayed diagnosis, and inadequate support, leaving them feeling isolated and frustrated.
The physical and emotional burden of dealing with these rare diseases can have a profound impact on the overall mental health and well-being of individuals and their families Selective treatment, poor public awareness, and prevention of these diseases can be hard physically and mentally, and it has affected the well - comprising patients and their families.
Increasing awareness of sarcoidosis and ILD in Rare Diseases is essential, emphasising the importance of early detection, accurate diagnosis, and access to primary care among Health professionals, researchers, and policymakers. Collaboration is essential to increase understanding, develop effective treatments, and improve support services for patients and their families.
It is inevitable that they will create a sense of community and solidarity among those affected by these conditions, providing a space to share experiences, access information and advocate for their needs.
Furthermore, raising awareness of rare diseases such as sarcoidosis and ILD significantly impacts medical research and innovation.
By highlighting the challenges individuals face in these situations, we can encourage greater investment in rare disease research, providing insights and improvements that benefit those affected and a wider range of physicians directly for the affected people and communities.
Advocacy and support groups play a pivotal role in this endeavour, offering resources, guidance, and a sense of belonging to individuals living with rare diseases like sarcoidosis and ILD. These organisations amplify patient voices, raise funds for research, and advocate for policy changes to improve the lives of those affected.
These conditions epitomise the complexities and impact of rare diseases, underlining the necessity of continued efforts to advance research, enhance care, and foster a more inclusive and supportive environment for those affected.
By uniting to raise awareness, advocate for change, and demonstrate solidarity, we can strive towards a future where everyone can lead a fulfilling and dignified life regardless of their health condition.
Disclaimer: The views expressed in this article are of the author and not of Medical Dialogues. The Editorial/Content team of Medical Dialogues has not contributed to the writing/editing/packaging of this article.
