Delhi HC forms panel to implement National Rare Disease Policy 2021 Kajal Rajput19 May 2023 4:45 PM IST“In order to implement the policy in an efficient manner and to ensure that the benefits of the policy reach the ultimate patients of rare disease who...
Odisha: Rs 10 lakh aid for each Duchenne Muscular Dystrophy patient Kajal Rajput8 May 2023 1:30 PM ISTBhubaneswar: Extending financial support to the patients suffering from Duchenne Muscular Dystrophy (DMD), the state government has allowed one-time...
Treatment of 40 children suffering from rare diseases: Delhi HC orders presence of Union Health Secretary Kajal Rajput7 May 2023 2:30 PM IST"Under such circumstances, the court cannot turn a blind eye to the medical condition of 40 children who are petitioners before the Court. The...
Import duty exempted on all drugs, food for special medical purposes for personal use to treat rare diseases Ruchika Sharma31 March 2023 1:03 PM ISTNew Delhi: The government has exempted basic customs duty on all drugs and food for special medical purposes imported for personal use for treatment...
Free treatment of children with rare diseases, Delhi HC seeks AIIMS response Kajal Rajput31 Jan 2023 5:30 PM ISTNew Delhi: Taking cognizance of the pleas concerning the free treatment of children with rare diseases like Duchenne Muscular Dystrophy (DMD),...
Delhi HC directs centre to release over Rs 5 Cr to fund clinical trials for rare diseases Kajal Rajput1 Jan 2023 3:15 PM ISTThe petitioners, who are suffering from several rare diseases including Duchenne Muscular Dystrophy (DMD) and Mucopolysaccharidosis II or MPS II...
HC asks Centre if financial aid for rare diseases covers clinical trials of experimental DMD drug Ruchika Sharma9 Aug 2022 3:00 PM ISTThe court said that several factors merited consideration of the competent authority on whether the expenses which are likely to be incurred in the...
Delhi HC Directs AIIMS: To examine medical records of Patients before commencing treatment for Duchenne Muscular Dystrophy (DMD) Revu suresh8 May 2022 4:30 PM ISTNew Delhi: The Delhi High Court recently directed the All India Institute of Medical Sciences (AIIMS) to examine medical records of children with...
Daily steroids improve motor and pulmonary function in kids with Duchenne muscular dystrophy: JAMA Dr. Kamal Kant Kohli6 May 2022 8:30 PM ISTNew research published in JAMA recommends daily steroid doses for children with Duchenne muscular dystrophy (DMD), marking a significant change in how...
VILTEPSO injection may improve motor function in Duchenne muscular dystrophy, confirms trial Dr Satabdi Saha5 July 2021 9:00 AM ISTVILTEPSO (viltolarsen) injection has been found to significantly benefit motor function in Duchenne muscular dystrophy in patients with a...
Vamorolone found effective in Duchenne muscular dystrophy in Duke trial Hina Zahid28 Sept 2020 11:31 AM ISTDURHAM, N.C. - A new drug Vamorolone is new hope for young boys with the progressive neuromuscular disease Duchenne muscular dystrophy (DMD) by...
FDA Approves Viltolarsen for Rare Duchenne Muscular Dystrophy Mutation Dr. Kamal Kant Kohli13 Aug 2020 10:00 AM ISTThe U.S. Food and Drug Administration has pgranted accelerated approval to Viltepso (viltolarsen) injection for the treatment of Duchenne muscular...
