Rare Diseases Treatment: Delhi AIIMS received Rs 23 crore from Govt in 5 years, reveals RTI Kajal Rajput31 July 2023 3:30 PM ISTAIIMS Delhi: The AIIMS Delhi received more than Rs 23 crore in funding from the Centre for treatment of rare diseases in the last five years,...
Patients of rare diseases urge Union Health Minister help for faster treatment at Govt hospitals Kajal Rajput4 July 2023 5:30 PM ISTNew Delhi: Patients of rare diseases waiting for treatment at AIIMS and Maulana Azad Medical College have urged Union Health Minister Mansukh...
Doctor highlights need for patient registry for rare diseases Sanchari Chattopadhyay27 Jun 2023 3:30 PM ISTBengaluru: While attending the 2nd international conference on ALS/MND (Amyotrophic lateral sclerosis/Motor neuron disease), Dr Harsha...
Delhi HC sets up 5 member panel to implement rare disease policy Kajal Rajput31 May 2023 9:30 AM ISTNew Delhi: The Delhi High Court has constituted a five-member committee to implement the rare diseases policy formulated by the Central...
Delhi HC forms panel to implement National Rare Disease Policy 2021 Kajal Rajput19 May 2023 4:45 PM IST“In order to implement the policy in an efficient manner and to ensure that the benefits of the policy reach the ultimate patients of rare disease who...
Health Ministry grants Rs 10 crore to AIIMS for treatment of rare diseases Kajal Rajput11 May 2023 4:30 PM ISTNew Delhi: In a bid to ensure that the treatment of children suffering from rare diseases does not stop due to lack of funds, the Ministry of Health...
Medical Bulletin 20/March/2023 Isra Zaman20 March 2023 3:45 PM ISTHere are the top medical news for the day:Preterm babies do not habituate to repeated painHeel lances can elicit substantial pain responses in...
Researchers identify genetic causes of three previously unexplained rare diseases Isra Zaman20 March 2023 9:15 AM ISTRare diseases affect approximately 1 in 20 people, but only a minority of patients receive a genetic diagnosis. Fewer than half of the 10,000 recorded...
Union Health Ministry includes 6 rare diseases under NPRD 2021, details Farhat Nasim11 March 2023 6:35 PM ISTNew Delhi: Enabling patients to avail financial assistance for treatment, the Union Health Ministry has included 6 rare diseases including Laron’s...
Health Ministry grants Rs 22.20 crore fund for treatment of 134 rare diseases patients Kajal Rajput27 Feb 2023 2:15 PM ISTNew Delhi: In a significant relief to the patients suffering from rare diseases, the Union Health Ministry has granted Rs 22.20 crore for 134 patients...
Free treatment of children with rare diseases, Delhi HC seeks AIIMS response Kajal Rajput31 Jan 2023 5:30 PM ISTNew Delhi: Taking cognizance of the pleas concerning the free treatment of children with rare diseases like Duchenne Muscular Dystrophy (DMD),...
No patient benefitted from National Policy for Rare Diseases scheme, BJP MP writes to Health Minister Revu suresh10 Jan 2023 11:15 AM ISTIn a tweet, the MP stated, "Last year, the govt assured financial assistance of Rs 50 lakh to every rare disease patient. So far, not a single patient...
