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Tag: rare diseases

You Searched For "rare diseases"
Dr Harsh Vardhan urges all cardiologists participation to fight Non Communicable Diseases

Dr Harsh Vardhan urges all cardiologists participation to fight Non Communicable Diseases

Medical Dialogues Bureau12 Jun 2019 3:21 PM IST
New Delhi: Dr Harsh Vardhan, Union Minister for Health and Family Welfare recently urged all the cardiologists of the country to come forward and be...
Rare Diseases: Supreme court seeks response of Centre, 34 states, UTs

Rare Diseases: Supreme court seeks response of Centre, 34 states, UTs

Medical Dialogues Bureau5 Feb 2019 9:14 AM IST
"Because the rare disease patients need urgent attention and delay in treatment thereof could be fatal therefore respondents are obliged to...
Patient groups concerned over delay in rare diseases treatment policy implementation

Patient groups concerned over 'delay' in rare diseases treatment policy implementation

Medical Dialogues Bureau21 Nov 2018 9:21 AM IST
 New Delhi: Patient's organisations on Tuesday sought immediate implementation of the National Policy for Treatment of Rare Diseases, stating the...
PIL in SC over committee formation for rare diseases treatment

PIL in SC over committee formation for rare diseases treatment

Medical Dialogues Bureau16 Oct 2018 2:04 PM IST
New Delhi: A Public Interest Litigation (PIL) has been filed in the Supreme Court against the Centre and state governments for "failing to constitute...
Understanding Orphan Diseases: What National Rare Disease policy says

Understanding Orphan Diseases: What National Rare Disease policy says

Medical Dialogues Bureau9 March 2018 5:16 PM IST
New Delhi: Rare diseases, which are often referred to as orphan diseases, are estimated to have impacted 72-96 million people in India. The Indian...
Govt has formulated national policy for rare diseases: Nadda

Govt has formulated national policy for rare diseases: Nadda

Medical Dialogues Bureau3 March 2018 9:29 AM IST
New Delhi: Union Health Minister J P Nadda today said the government had formulated a national policy for "rare diseases", while asserting that the...
Delhi state government takes a step forward for rare diseases

Delhi state government takes a step forward for rare diseases

Medical Dialogues Bureau11 Feb 2018 9:20 AM IST
New Delhi: As an important step towards expediting the process of providing treatment to rare disease patients, the Delhi state government, in the...
Implement national policy on rare diseases: HC tells Centre

Implement national policy on rare diseases: HC tells Centre

savita thakur thakur23 Aug 2017 9:40 AM IST
New Delhi: The Delhi High Court has asked the Centre to take urgent steps to make the National Policy for Treatment of Rare Diseases functional at the...
Use Rs 100 crore fund for rare diseases: Delhi HC directs Health Ministry

Use Rs 100 crore fund for rare diseases: Delhi HC directs Health Ministry

savita thakur thakur20 Aug 2017 9:15 AM IST
New Delhi: The Joint Secretary of the Ministry of Health & Family Welfare (MoH&FW), Lav Aggarwal, gave a presentation on the National Policy...
Implement National Policy on Rare Diseases: HC to Centre

Implement National Policy on Rare Diseases: HC to Centre

savita thakur thakur1 Jun 2017 11:29 AM IST
New Delhi: The Delhi High Court directed the Centre to implement without delay its National Policy for Treatment of Rare Diseases, which was...
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