About 70 million Indians have life-threatening rare diseases: ISCR
Advertisement
NEW DELHI: Around 70 million people in India suffer from "life threatening" rare diseases, a clinical research body said.
Indian Society for Clinical Research (ISCR) said there are close to 7,000 known rare diseases ay present most of which are "progressive, life-threatening and chronically debilitating conditions.
"There is no treatment for more than 90 per cent of these diseases and the number of patients with rare diseases continues to increase every year. The vast majority of rare diseases are genetically inherited and exist over the lifetime of a patient," it said.
"Approximately, 50 per cent of those affected by rare diseases are children, of whom around 30 per cent will not live to see their fifth birthday. On an average, it takes around seven years to diagnose a rare disease," ISCR said.
"In India alone, there are an estimated 70 million patients living with a rare disease, many of whom do not know they have a rare disease and even when they do, they either have no access to treatment or cannot afford it," it said.
Indian Society for Clinical Research (ISCR) said there are close to 7,000 known rare diseases ay present most of which are "progressive, life-threatening and chronically debilitating conditions.
"There is no treatment for more than 90 per cent of these diseases and the number of patients with rare diseases continues to increase every year. The vast majority of rare diseases are genetically inherited and exist over the lifetime of a patient," it said.
"Approximately, 50 per cent of those affected by rare diseases are children, of whom around 30 per cent will not live to see their fifth birthday. On an average, it takes around seven years to diagnose a rare disease," ISCR said.
"In India alone, there are an estimated 70 million patients living with a rare disease, many of whom do not know they have a rare disease and even when they do, they either have no access to treatment or cannot afford it," it said.
Our comments section is governed by our Comments Policy . By posting comments at Medical Dialogues you automatically agree with our Comments Policy , Terms And Conditions and Privacy Policy .
Disclaimer: This website is primarily for healthcare professionals. The content here does not replace medical advice and should not be used as medical, diagnostic, endorsement, treatment, or prescription advice. Medical science evolves rapidly, and we strive to keep our information current. If you find any discrepancies, please contact us at corrections@medicaldialogues.in. Read our Correction Policy here. Nothing here should be used as a substitute for medical advice, diagnosis, or treatment. We do not endorse any healthcare advice that contradicts a physician's guidance. Use of this site is subject to our Terms of Use, Privacy Policy, and Advertisement Policy. For more details, read our Full Disclaimer here.
NOTE: Join us in combating medical misinformation. If you encounter a questionable health, medical, or medical education claim, email us at factcheck@medicaldialogues.in for evaluation.